Ohio Girl with Fatal Illness Cannot Get Coverage

This important video shows a girl in Ohio who has a rare genetic illness called Epidermolysis Bullosa (EB). Her skin layers lack connective tissue, resulting in chronic blisters and open wounds. Without specialized bandages she is exposed to infection. Many born with EB do not survive infancy because of severe infection. Natasha in Ohio is 16 years old and lives with her mother who works and has insurance. They also have Medicaid, yet she cannot get the needed bandages covered. Natasha has been in and out of the hospital with infection after infection. Something must be done to help her get these costly supplies. Please see this important story:


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